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For the person with the diagnosis · Living with it

Your Walk, Kept Safe

The morning walk may be the best part of your day. Keeping it usually comes down to a few small habits, and most of them live in the phone in your pocket.

Key takeaways

  • A diagnosis does not mean you have to stop walking alone. Many people with early dementia keep doing it safely for a long time.
  • The most common failure is not the walking. It is the phone. A dead battery turns a short moment of confusion into a search. Charge it before every walk.
  • Put your medical information on your lock screen. iPhone's Medical ID and Android's emergency information can be read by a stranger or first responder without unlocking the phone.
  • Share your location with one person you trust. It turns "where are you?" into a glance at a map.
  • Decide now what you will do if you get lost: stop, stay put somewhere safe, and call. A plan made in advance is much easier to follow under stress.

Should I stop walking alone now that I have a diagnosis?

Not automatically. If you are walking familiar routes without trouble, the goal is to keep doing it, with a few safeguards.

Walking alone is independence, exercise and time to think, all at once. Giving it up early costs a lot. The question is not whether you have a diagnosis but whether you have had trouble: getting confused about where you are, not recognizing a familiar street, or taking much longer to get home than you expected.

Getting lost does happen with dementia. The Alzheimer's Association estimates that six in ten people with dementia will wander or get lost at least once. Planning for it now, while it has not happened, is the same as wearing a seatbelt.

What should I always take with me?

A charged phone, some identification, and anything you need for your health. The phone is the most important.

One woman in an early-stage group got lost on her morning walk for the first time. Her phone had just enough charge for one call to say she was lost before it died. Her husband found her because her phone's location sharing gave him a place to start. The walk was not the problem. The battery was.

How should I set up my phone?

Put your medical information on the lock screen, share your location with someone you trust, and save a "home" address in your maps app.

What should I do if I get lost?

Stop, get somewhere safe, and call. Do not keep walking in the hope that it will start to look familiar.

Write this down and keep it with your ID, because a plan you have decided on in advance is much easier to follow when you feel flustered:

How do I keep walking for as long as possible?

Stick to routes you know, at times of day when you feel sharpest, and agree a few simple rules with your family. Then review them together every few months.

Frequently asked questions

Is it safe to walk alone with early-stage dementia?
For many people, yes, especially on familiar routes in daylight with a charged phone, identification and location sharing turned on. The decision depends on whether you have had trouble finding your way, not on the diagnosis alone.
How common is getting lost with dementia?
The Alzheimer's Association estimates that six in ten people with dementia will wander or get lost at least once. It can happen at any stage, which is why simple safeguards are worth setting up early.
How do I put medical information on my phone lock screen?
On iPhone, fill in Medical ID in the Health app and turn on Show When Locked. On most Android phones, add emergency and medical information in the safety or emergency settings. Both can be viewed by first responders without unlocking the phone.
What should I do if I get lost on a walk?
Stop walking, get somewhere safe, and call your first contact. Describe street signs and landmarks, use your maps app to find home, and ask a shop worker or passerby for help. If you cannot reach anyone, call 911 and say you have a memory condition.
How can my family find me if I get lost?
Share your location with a trusted family member using Find My on iPhone or location sharing in Google Maps. Carry a charged phone and identification, and tell someone your route and expected return time.
When should I stop walking alone?
Talk it over with your family and doctor if you have gotten lost more than once, have trouble recognizing familiar places, or take much longer to get home than expected. Agreeing on these signs in advance keeps the decision yours.

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Sources

  1. Alzheimer's Association, "Wandering," alz.org.
  2. Apple, "Set up your Medical ID in the Health app on your iPhone," support.apple.com.
  3. Google, "Get help in an emergency using your Pixel phone," support.google.com.
  4. Google, "Share your real-time location with others in Google Maps," support.google.com.
Peer support and education, not medical or safety advice for your specific situation. Phone features and settings vary by device and software version. If you have gotten lost or confused while walking, talk with your doctor and family about a safety plan.